About this video

This video is for patients who have been diagnosed with thyroid cancer. It explains the care pathway, including surgery and treatment options, what to expect during recovery, and how to get support.
Please watch the video and also read through the information on this page. Useful links and contact details are provided so you know where to go for more help.

Meet the team

Mohammad Adeel
ENT Consultant

Sarah Hillary - Thyroid Clinical Nurse Specialist

Sarah Hillary
Cancer Nurse Specialist

Contact us

  • Thyroid Cancer Specialist Nurse: 01274 365848 Monday to Friday, 8am to 5pm excluding bank holidays. Outside of these times please leave a message and we will call back as soon as possible.
  • Ward contact details: provided when you leave hospital. Ask staff before discharge if you do not have them.

About thyroid cancer

The thyroid gland

The thyroid is a small butterfly-shaped gland at the front of the neck, just below the voice box. It has two sides (lobes) joined by a thin bridge called the isthmus.

The thyroid is part of the endocrine system. It makes hormones that control your metabolism – how your body turns food and drink into energy. One of these hormones is called Thyroxine. Every cell in the body needs this energy to work

Thyroid cancer

Thyroid cancer is rare in the UK. It can happen at any age but is more common in women.
Symptoms

  • A painless lump in the neck that slowly increases in size
  • Difficulty swallowing (because the thyroid is close to the oesophagus, the food pipe)
  • Difficulty breathing (because the thyroid is close to the trachea, the windpipe)
  • A hoarse voice that has no obvious cause.

Types of thyroid cancer
There are four main types:

  • papillary
  • follicular
  • medullary
  • anaplastic

More information on Thyroid Cancer (Macmillan Cancer Support).

Diagnosis

If your GP suspects thyroid cancer, you will be referred to a hospital specialist.
You may have:

  •  an examination of your neck and vocal cords
  •  an ultrasound scan of the thyroid – During this if the specialist feels there is an area of concern they will take a fine needle aspiration (FNA) or Core biopsy to collect cells or tissue for testing.

Sometimes this can not provide all the information we need to give a diagnosis. If this is the case a diagnostic hemithyroidectomy would be recommended.
Sometimes it is not possible to confirm if something is a cancer from ultrasound and fine needle aspiration. In these cases, a diagnostic lobectomy may be recommended

If cancer is confirmed, your case will be discussed at a regional multidisciplinary team meeting (MDT). This is a group of specialists who agree the best treatment plan for you. Following this meeting your specialist will explain the outcome and recommendations.

You may also need scans such as CT or MRI.

You will also be offered a holistic needs assessment by telephone to check your wider needs and provide support.

BRI, scanner unit

Treatment

Surgery

You may need one or more of the following:

  • Hemithyroidectomy: removal of one lobe of the thyroid.
  • Total thyroidectomy: removal of the whole thyroid gland.
  • Neck dissection: removal of lymph nodes in the neck.

Your surgeon will explain which operation is recommended for you, why it is needed, and any risks. You will also be given written information.
Most people stay in hospital for one night and go home the day after surgery. You may have:

  • a neck drain, removed before discharge
  • stitches that either dissolve on their own or are removed later by your GP practice

You will get a phone call around two weeks after surgery to check on your recovery and explain next steps.

journey into theatre
Levothyroxine

The thyroid makes a hormone called thyroxine. If all of your thyroid is removed, you will need to take levothyroxine tablets for life.
Sometimes, even if only half the thyroid is removed, you may still need levothyroxine. This will be decided by how you feel and through blood tests.

Radioactive Iodine (RAI)

Some patients are advised to have radioactive iodine treatment after surgery. This is given in Leeds by the oncology team.

  • It is usually given as a capsule.
  • You will stay in an isolation room for a few days.
  • You may need to follow safety advice at home for 1–2 weeks.

Before treatment, you will meet the oncology team to discuss why it is recommended and what to expect. You may also need to follow a low-iodine diet and have hospital injections beforehand.
You will meet the specialist nurses at Leeds and they will be your contact during this treatment.

After Treatment

Results

Anything removed during surgery is sent to the laboratory (histopathology). Results usually take a few weeks. Once available, your surgeon will meet with you to explain what they mean and whether more treatment is needed.

Follow-up and Support

You will see your surgeon a few weeks after surgery. Longer-term follow-up usually includes:

  • ultrasound scans
  • blood tests

Depending on your treatment, you will be seen by either the ENT team or the Endocrinology team.