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Support Groups
The following are national organisations. This list is by no means exhaustive and many of those listed have, in turn, links to further useful sites.
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ARMA is the UK umbrella association which brings together support groups, professional bodies and research organisations in the field of arthritis and other musculoskeletal conditions. Many useful links. Bride House, 18-20 Bride Lane, London EC4Y 8EE Telephone: 020 7842 0910 |
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Information and support, also discussion forum. Links to local group which meets at St Mary at Stoke Church Hall, Stoke Street, Ipswich on 1st Friday of each month at 7.00pm. 18 Stephenson Way, London NW1 2HD, Telephone: 020 7380 6500, Freephone 0808 800 4050 |
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ARC is a major charity committed to finding a cure for arthritis. It raises funds to promote medical research into the cause, treatment and cure of arthritic conditions: to educate medical students, doctors and allied healthcare professionals about arthritis and to provide information to people affected by arthritis and to the general public. It produces a wide range of patient leaflets relating to arthritis in its many forms. Copeman House, St Mary's Court, St Mary's Gate, Chesterfield, Derbyshire S41 7TQ, Telephone: 0870 850 5000 |
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Benefits Enquiry Line (BEL), Telephone: 0800 882200 |
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Telephone: 0808 808 7777 |
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St Catherine’s Hospital, Tickhill Road, Doncaster DN4 8QN, Telephone: 01302 310123 |
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Redbank House, 4 St Chad's Street, Manchester M8 8QA, Telephone: 0870 770 2866 |
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The Disabled Living Foundation provides free, impartial advice about all types of equipment for older and disabled people, their carers and families. It produces free factsheets on a wide range of topics and has an online tool which allows you to carry out a self-assessment to see what equipment can help you. 380-384 Harrow Road, London W9 2HU Helpline: 0845 130 9177, Telephone: 020 7289 6111 |
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PO Box 206, Stourbridge DY9 8YL, Telephone: 0870 752 5118 |
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Lupus UK is the only national registered charity supporting people with systemic lupus erythematosis and discoid lupus. There are 30 regional groups which arrange meetings and talks as well as fundraising events and regular newsletters. St James House, Eastern Road, Romford, Essex RM1 3NH, Telephone: 01708 731251 |
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Ashwellthorpe, Norwich, NR16 1EX, Telephone: 01508 489449 |
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Crowthorne Business Estate, Old Wokingham Road, Crowthorne, Berkshire, RG45 6XD, Telephone: 01344 661000 |
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Formally known as D&P Support Group, this charity provides information and practical advice and research into dermatomyositis, polymyositis, juvenile dermatomyositis and inclusion body myositis. 146 Newtown Road, Woolston, Southampton SO19 9HR, Telephone: 02380 449708 |
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NASS is run by people with ankylosing spondylitis and offers advice, support and exercises for fellow sufferers. PO Box 179, Mayfield, East Sussex TN20 6ZL, Telephone: 01435 873527 |
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National Association for the Relief of Paget’s Disease (NARPD) |
This is a national charity which offers support and information to people with Paget's disease. It also sponsors research into the causes and treatment of this disease. 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH, Telephone: 0161 799 4646 |
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This is a useful site for both patients and health professionals. It gives information on osteoporosis, research and educational events, as well as a number of useful links. Camerton, Bath, BA2 0PJ, Telephone: 0845 130 3076; Helpline 0845 450 0230 |
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This is a patient-led national charity focusing specifically on rheumatoid arthritis (RA). It provides information and support, encourages self-help and facilitates networking amongst people with RA, and also campaigns for better services for patients. Unit B4 Westacott Business Centre, Westacott Way, Littlewick Green, Maidenhead, Berkshire SL6 3RT, Telephone: 01628 823524, Helpline: 0845 458 3969 |
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21 Portland Place, London W1B 1PY, Telephone: 0207 6318870 |
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Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMR-GCA UK) is a registered charity established to meet the needs of people with these debilitating conditions. |
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12 City Forum, 250 City Road, London EC1V 8AF, Telephone: 0207 2503222 |
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112 Crewe Road, Alsager, Cheshire ST7 2JA, Telephone: 01270 872776 |
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12 Acton Road, Mackworth, Derby DE22 4JF, Telephone: 01332 521595 |
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PO Box 28660, Kansas City, MO 64188-8660 USA, Telephone: 00 1 800 277-9474 |
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30 Millbank, London SW1 4QD, Telephone: 0207 8028200 |
